SOLICITATION LETTER FOR HEPATITIS PATIENTS

Dear interested members,

The World Hepatitis Day is fast approaching and will be a unique occasion for patients, health ministers, policy makers, civil society, public health specialists and pharmaceutical companies to come together to address the global viral hepatitis epidemic.
We want to use this opportunity to showcase the unified voice of hepatitis patient advocacy groups across the world and highlight the devastating impact that viral hepatitis has on peoples’ lives so we are creating a powerful video of our members that will create an effective call to action.
The video will be an inspiring collection of short clips that will be shown on our website and in the welcome session of the WHA Pre-Summit Member Conference (August 31) and the opening ceremony of the World Hepatitis Summit (September 2) and you can be part of it!
To feature in the video all you need to do is record yourself – in your own language -responding to questions on the impact of hepatitis and what change you want to happen. The guidelines attached provide more information on what we want you to say, how you should make your video and how to send it to us.
Please send us your video by July 28. The sooner we receive your video, the more likely we are able to include it in the collection which we will be used for a film.
We look forward to receiving your submission and your contribution to this powerful video. If you have any questions regarding the video, please do not hesitate to get in touch. This is your opportunity to tell the world just how important tackling hepatitis is.

Kind regards,

Elohim Foundation.

Advocacy Tool Development Guidance PEARL Support Group

Please take your time to respond to this advocacy tool development exerciser, which is to help inform our demand from the Federal Government of Nigeria and our presentation at the World Hepatitis Summit at Scotland in the UK towards the promotion of Hepatitis intervention in Nigeria and the World at large.

We are not looking for a masterpieces, we are more interested in what you have to say and in giving you a platform to say it at the World Hepatitis Summit in Scotland.

What we would like you to talk about
We want to highlight the huge impact living with viral Hepatitis can have and stress what needs to be done to improve the lives of hepatitis patients and eliminate hepatitis.

We would like you, or a hepatitis patient, to record yourself doing the following:
Please answer the following questions: What is the biggest impact viral hepatitis has had on your life?
What do you want your government to do to change this? (Please start your response to quest 2 with the statement: ‘I want my government to ………….

Record yourself saying the following statement “We want a world without viral hepatitis”
Please record the video in your own language and send us the written English translate of what you said.

Making your video

You can use anything you have easily to hand, for example a phone or camcorder will be ok.
If you make a mistake, just do it again until you are happy
When you have recorded your video, please record a further 10-15 seconds of the person looking straight at the camera without talking, you can smile, look serious, or anything in between, the choice is yours.

Frame your video as a ‘headshot’. Something like the example below. The person should talk directly to the camera.

Be sure to allow a little space above the person’s head and if you are using a phone, try to make sure that it is orientated in ‘landscape’, like this image below:

Expert contact details

Contact:

Organizational Contact us by phone: on 07025094985, 08090315509, 08033494865 OR at info@elohimfoundation.org or Chinyere@elohimfoundation.org or julius@elohimfoundation.org

Physician/clinicians Contact: Dr. Hadiza J. Balarabe- 07032069722, 08024328831. Danjuma Abba: 08181817888, 08038158558

ELOHIM FOUNDATION 2015 WORLD HEPATITIS DAY (28TH JULY, 2015.)

Activities set aside for the 2015 world Hepatitis day, by Elohim Foundation, includes the following:

1. Live phone-in Radio program to create awareness and respond to audience question on Hepatitis. 96.9 Cool FM -27/07/2015

2. Annual lecture at Tunga-maji Community in Gwagwalada -28/07/2015

Features:

a) Free HBV and HCV screening
b) HBV Vaccination for negatives
c) HBV Vaccination for positives
d) Free HIV testing and referral
e) Free malaria testing and treatment for positive person
f) Free BP monitor
g) Counseling and referrals

3. Media Round Table meeting to sensitize  the FCT Community through the print and TV media on the activities of Elohim Foundation on Hepatitis and to inform the general public of the Virtual Support Group platform.

ELOHIM FOUNDATION 2014 WORLD HEPATITIS DAY (28TH JULY, 2014.)

WRITE A DIFFERENT FUTURE, ERASE HEPATITIS #ABCDE.

Event Order Time

1.) Road work in Kubwa by staff and volunteers of Elohim Foundation 1:00pm

2.) Arrival and Registration of participants/Guest 2:00pm

3.) Opening prayer 2:30pm

4.) Introduction of Guests 2:35pm

5.) Welcome address by the Project Director Elohim Foundation 2:40pm

6.) Good will remark by 2:45pm

  • Director FCT Public health Department

  • NYSC State Coordinator’s Representatives

  • WHO Representatives

7.) Lecture on Hepatitis by Elohim Foundation/FCT Public Health Rep 3:00pm

8.) Question and Answer session 3:45pm

9.) Interlude: Drama by NYSC Cultural Group titled 4:00pm

Hepatitis is closer than you think”

9.) Vote of thanks 4:30pm

10.) Light Refreshment 5:00pm

12.) Hepatitis Testing & Vaccination (to run concurrently) 1:00 – 5:30pm

ELOHIM FOUNDATION 2014 WHD WEEK (24th to 28th July, 2014) PROGRAM OF EVENT

TITLED: WRITE A DIFFERENT FUTURE, ERASE HEPATITIS #ABCDE

S/n

ACTIVITIY

STRATEGY

Thurs. 24th to Mon. 28th July 2014

TIME

LOCATION

PARTICIPANTS

Thurs.

Fri.

Sat.

Sun.

Mon.

1

Hepatitis Awareness Rally

Motor cade rally and through GSM SMS (Etisalat Network)

X

X

12 noon to 4 pm

Kubwa to Wuse, Garki, CBD Secretariat and back to Kubwa.

Elohim Foundation Personnel & Volunteers, NYSC Members, FCT Public Health Department, the Media Reps. And the general Public.

2

First FCT Hepatitis Data Survey.

KAB&P Based survey among Positives and FCT Health Facilities.

X

X

X

X

X

10:00am to S:00pm.

Communities and facilities in Bwari Area Council

HBV & HCV infected persons and Health worker at the facilities.

3

Joint Press Conference with FCT PHD.

Electronic & Print Media coverage

X

11am prompt.

Radio House Press Center, Area 10 Garki.

Elohim Foundation, FCT Public Health Department, Electronic and Print Media Reps.

4

Free HBV & HCV Screening and Vaccination to the adult public.

Mobile Outreach

X

X

X

10:00am to 4:00pm

Secondary Schools in Kubwa & Dutse. NYSC Corp members at the Camp

Elohim Foundation Personnel & Volunteers, FCT Public Health Staff and NYSC Medical Corps Team.

5

WHD Lecture & Events

Presentations

X

10:00am

NYSC Lecture Hall, Kubwa.

Elohim Foundation Personnel & Volunteers, FCT NYSC Personnel & Corp members, FCT Public Health Department, GSK Vaccine, WHO Nigeria Rep. Media Reps, Other NGOs & Partners.

ELOHIM FOUNDATION becomes the third member organization of World Hepatitis Alliance in Nigeria.

Given the application of Elohim Foundation in April, 2013, the governing council of WHA gladly admits Elohim Foundation as a voting member organization of the WHA. This statue enables Elohim Foundation to not only access information and materials from the WHA but to contribute in decision making of the council at the regional and international level.

The World Hepatitis Alliance, Mission and Activities

The World Hepatitis Alliance (the ‘Alliance’) is a not-for-profit international umbrella Non-Governmental Organisation (NGO) established in December 2007 in Geneva, Switzerland, whose membership is composed of organisations working in the field of viral hepatitis. It is patient-led and patient-driven. It is not aligned with any party political views, does not engage in political activity and does not discriminate on the basis of creed, religion, lack of religion, ethnicity, sex or sexual orientation.

 

World Hepatitis AllianceMission Statement

The Alliance provides global leadership and supports action that will halt the death toll and improve the lives of people living with chronic viral hepatitis B and C.  Through better awareness, prevention, care, support and access to treatment, our ultimate goal is to work with governments to eradicate these diseases from the planet.

 

World Hepatitis Alliance Vision Statement

World Hepatitis Alliance – Seeking a world without viral hepatitis B & C

 

The activities of the World Hepatitis Alliance include, but are not limited to:

  1. Raising awareness of chronic viral hepatitis. In particular this involves coordinating global activities for World Hepatitis Day and supporting regional and national World Hepatitis Day programmes
  2. Reducing the stigma associated with chronic viral hepatitis by improving education and understanding of chronic viral hepatitis
  3. Working with the World Health Organization to give viral hepatitis the profile and priority it needs
  4. Working with member groups to help them ensure that every country has an effective strategy in place to combat viral hepatitis
  5. Supporting member groups and helping them to build capacity
  6. Liaising with other NGOs to secure support and endorsement for the work of the Alliance, its member groups and the annual World Hepatitis Day

 

Structure

The World Hepatitis Alliance is composed of Members which are organisations with a primary interest in chronic viral hepatitis. Individuals may not be Members but umbrella organisations may. Organisations or groups that do not qualify for membership may become ‘Associated Groups’.

ELOHIM FOUNDATION PARTNERS WITH FCT NYSC AND TFC PUBLIC HEALTH DEPARTMENT AND OTHER STAKE Holders TO HOST 2013 WORLD HEPATITIS DAY, JULY 28.

On the 28th of July, 2013, Elohim Foundation will for the first time mark the World Hepatitis Day Guinness Record event of SEE NO EVIL, HEAR NO EVIL, SAY NO EVIL While testing and vaccinating about 500 corp members at the event. The under stated are the program schedule for the day.

 

Elohim Foundation

World Hepatitis Day

28th July, 2013.

 

Event Order

Time

1.)        Road work in Kubwa by staff and volunteers of Elohim Foundation     1:00pm

2.)        Arrival and Registration of participants/Guest                                         2:00pm

3.)        Opening prayer                                                                                             2:30pm

4.)        Introduction of participant groups and special guest                              2:35pm

5.)        Welcome address by the Project Director Elohim Foundation               2:40pm

6.)        Good will remark by                                                                                     2:45pm

§  Director FCT Public health Department

§  WHO  Representatives

§  GSK   Representatives

§  Health-Plus Representative

§  NYSC  State Coordinator’s Representatives

7.)        Lecture on Hepatitis by Elohim Foundation/FCT Public Health Rep 3:00pm

8.)        Question and Answer session                                                                   3:45pm

9.)        Interlude: Drama by NYSC Cultural Group titled                                    4:00pm

      “Hepatitis is closer than you think”

9.)        The 3 monkey Event                                                                                   4:30pm           

10.)     Light Refreshment                                                                                     5:00pm            

12.)     Vote of thanks                                                                                            5:30pm

13.)     Hepatitis Testing & Vaccination (to run concurrently)            1:00 – 5:30pm

ELOHIM FOUNDATION becomes the third member organization of World Hepatitis Alliance in Nigeria.

A non-for-profit organization